Letter: Cole’s Crew fundraising event

By on May 9, 2013

This year, Cole’s Crew will partner with The Children’s Tumor Foundation, the leading non-profit funding source of Neurofibromatosis (NF) research in the world, to host The Children’s Tumor Foundation NF Walk Chicago.

On Saturday, June 29, Cole’s Crew will be in full force at the Gunnar Anderson Forest Preserve (Government Center) in Geneva, for a Walk/5k Fun Run. The goal for this year is to raise $25,000 to further enhance research.

On a personal note, Cole (Rutter) continues to enjoy the many things that all boys his age usually enjoy. He is still heavily involved in baseball and is coming to the realization that his limitations could very well make this his last year of competition. Many of you would be very surprised if you saw this little boy walk up to the plate, standing next to a catcher that towers a foot taller, and then, to their surprise, smacks the ball over the heads of the infield.

NF is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. NF is a progressive disorder that affects all races and both sexes equally. It is a real disease in need of more awareness, funding, and research. Currently, there is no cure or effective treatment.

Many important advances have been made of late, specifically, that NF is closely linked to many of the common forms of cancer, brain tumors, and learning disabilities. You can find more information about NF by visiting The Children’s Tumor Foundation’s website at www.ctf.org.

As many of you know, Cole was diagnosed with neurofibromatosis at the age of 2, and each year he has been faced with unpredictable ailments. Though 2013 has been somewhat normal for Cole (normal in terms of an NF child), he still continues to struggle with different setbacks every day. Cole has been dealing with abdominal issues that resulted in a colonoscopy and endoscopy to determine the everyday pain he has been suffering from. It has also been determined that the tumors in his jaw have come back and until he stops growing, no aggressive treatment can be performed. As in years past, Cole just goes about his daily routine knowing all too well that this is just something he has to deal with—being a child inflicted with a terrible disease that has no cure.

Please consider joining us this year at the walk/5k run. We have always viewed this as “Cole’s Day,” and he would be extremely happy if there were many of you walking by his side. So please join us to support his crusade to find a cure. It is easy to be a participant in the walk/run. Register online as part of Cole’s Crew or form your own team.

If you are unable to walk, you can help the cause by sending a check with the donor form, or visiting www.ctf.org/chicago2013/cole. Sponsorships are also available.

You can also check to see if your office has a matching gift program. Your donations are very much appreciated and they truly do make a difference.

Dan and Julie Rutter
Sugar Grove